{"id":467497,"date":"2020-04-05T04:34:50","date_gmt":"2020-04-05T11:34:50","guid":{"rendered":"https:\/\/disabilityvisibilityproject.com\/?p=467497"},"modified":"2026-02-12T17:19:33","modified_gmt":"2026-02-13T01:19:33","slug":"ep-74-coronavirus-and-caregiving","status":"publish","type":"post","link":"https:\/\/disabilityvisibilityproject.com\/2020\/04\/05\/ep-74-coronavirus-and-caregiving\/","title":{"rendered":"Ep 74: Coronavirus and Caregiving"},"content":{"rendered":"<!--powerpress_player--><div class=\"powerpress_player\" id=\"powerpress_player_2778\"><audio class=\"wp-audio-shortcode\" id=\"audio-467497-1\" preload=\"none\" style=\"width: 100%;\" controls=\"controls\"><source type=\"audio\/mpeg\" src=\"https:\/\/media.blubrry.com\/disability_visibility\/content.blubrry.com\/disability_visibility\/Final_Ep_74.mp3?_=1\" \/><a href=\"https:\/\/media.blubrry.com\/disability_visibility\/content.blubrry.com\/disability_visibility\/Final_Ep_74.mp3\">https:\/\/media.blubrry.com\/disability_visibility\/content.blubrry.com\/disability_visibility\/Final_Ep_74.mp3<\/a><\/audio><\/div><p class=\"powerpress_links powerpress_links_mp3\" style=\"margin-bottom: 1px !important;\">Podcast: <a href=\"https:\/\/media.blubrry.com\/disability_visibility\/content.blubrry.com\/disability_visibility\/Final_Ep_74.mp3\" class=\"powerpress_link_pinw\" target=\"_blank\" title=\"Play in new window\" onclick=\"return powerpress_pinw('https:\/\/disabilityvisibilityproject.com\/?powerpress_pinw=467497-podcast');\" rel=\"nofollow\">Play in new window<\/a> | <a href=\"https:\/\/media.blubrry.com\/disability_visibility\/content.blubrry.com\/disability_visibility\/Final_Ep_74.mp3\" class=\"powerpress_link_d\" title=\"Download\" rel=\"nofollow\" download=\"Final_Ep_74.mp3\">Download<\/a> | <a href=\"#\" class=\"powerpress_link_e\" title=\"Embed\" onclick=\"return powerpress_show_embed('467497-podcast');\" rel=\"nofollow\">Embed<\/a><\/p><p class=\"powerpress_embed_box\" id=\"powerpress_embed_467497-podcast\" style=\"display: none;\"><input id=\"powerpress_embed_467497-podcast_t\" type=\"text\" value=\"&lt;iframe width=&quot;320&quot; height=&quot;30&quot; src=&quot;https:\/\/disabilityvisibilityproject.com\/?powerpress_embed=467497-podcast&amp;amp;powerpress_player=mediaelement-audio&quot; title=&quot;Blubrry Podcast Player&quot; frameborder=&quot;0&quot; scrolling=&quot;no&quot;&gt;&lt;\/iframe&gt;\" onclick=\"javascript: this.select();\" onfocus=\"javascript: this.select();\" style=\"width: 70%;\" readOnly><\/p><p class=\"powerpress_links powerpress_subscribe_links\">Subscribe: <a href=\"https:\/\/itunes.apple.com\/us\/podcast\/disability-visibility\/id1282878324\u00a0?mt=2&amp;ls=1#episodeGuid=https%3A%2F%2Fdisabilityvisibilityproject.com%2F%3Fp%3D467497\" class=\"powerpress_link_subscribe powerpress_link_subscribe_itunes\" target=\"_blank\" title=\"Subscribe on Apple Podcasts\" rel=\"nofollow\">Apple Podcasts<\/a> | <a href=\"https:\/\/subscribebyemail.com\/disabilityvisibilityproject.com\/feed\/podcast\/\" class=\"powerpress_link_subscribe powerpress_link_subscribe_email\" target=\"_blank\" title=\"Subscribe by Email\" rel=\"nofollow\">Email<\/a> | <a href=\"https:\/\/disabilityvisibilityproject.com\/feed\/podcast\/\" class=\"powerpress_link_subscribe powerpress_link_subscribe_rss\" target=\"_blank\" title=\"Subscribe via RSS\" rel=\"nofollow\">RSS<\/a><\/p><p>&nbsp;<\/p>\n<p><span style=\"font-weight: 400;\">What a time to be alive right now, huh? How are you all holding up? Me, I\u2019m honestly trying not to freak out. The shit is real. What gives me hope and keeps me going is seeing the wisdom of disabled, chronically ill, older, and immunocompromised people in the beginning of the coronavirus pandemic. We have seen and been through things. <\/span><\/p>\n<p><span style=\"font-weight: 400;\">Today\u2019s episode is about the coronavirus and caregiving with <a href=\"https:\/\/webauntie.tumblr.com\">Dawn Gibson<\/a> and <a href=\"https:\/\/slowwalkersseemore.com\/\">Heather Watkins<\/a>. Dawn <\/span><span style=\"font-weight: 400;\">is the founder and host of the Spoonie Chat, an online community on Twitter and Facebook, she\u2019s also a patient advocate, writer, and consultant.<\/span><span style=\"font-weight: 400;\"> Heather is a <\/span><span style=\"font-weight: 400;\">Boston-based disability rights activist, author, mother, speaker. <\/span><span style=\"font-weight: 400;\">Dawn and Heather talk about how they are taking care of themselves right now, the impact of the coronavirus pandemic on their daily lives, and their experiences as caregivers. I believe we are modern-day oracles and it\u2019s time for people to listen to us. <\/span><\/p>\n<h3><strong>Transcript<\/strong><\/h3>\n<p><a href=\"https:\/\/docs.google.com\/document\/d\/10ebfj_diTTXD9UE_Cy1Sx5FhjiQYLh2XyBgxVXfzfnk\/edit?usp=sharing\"><strong>[Google doc]<\/strong><\/a>\u00a0\u00a0 \u00a0\u00a0<a href=\"https:\/\/disabilityvisibilityproject.com\/wp-content\/uploads\/2020\/04\/Coronavirus-and-Caregiving.pdf\"><strong>[PDF]<\/strong><\/a><\/p>\n<h3><strong>Related Links<\/strong><\/h3>\n<p>&nbsp;<\/p>\n<p><a href=\"https:\/\/creakyjoints.org\/living-with-arthritis\/swine-flu-lessons-for-coronavirus-chronic-illness-patients\/\">I Still Have Complications from the 2009 Swine Flu, So Understand Why Coronavirus Is Worrying People with \u2018Underlying Health Conditions<\/a>, Dawn Gibson, March 5, 2020, Creaky Joints.<\/p>\n<p><a href=\"https:\/\/wakelet.com\/wake\/1633ef52-2ade-43a9-b118-50d19f821cb7\">#Coronavirus and the disability community: Collection of stories, articles, and resources.<\/a><\/p>\n<p><a href=\"https:\/\/disabilityvisibilityproject.com\/2020\/03\/30\/fatphobia-ableism-and-the-covid-19-pandemic\/\">An Unacceptable Sacrifice: Fatphobia, Ableism, and the COVID-19 Pandemic<\/a>, Finn Gardiner, March 30, 2020, Disability Visibility Project.<\/p>\n<p><a href=\"https:\/\/disabilityvisibilityproject.com\/2020\/03\/26\/disabled-communities-in-the-covid-19-pandemic\/\">Virtual Home Building &amp; Rebuilding: Disabled Communities in the COVID-19 Pandemic<\/a>, Amy Gaeta, March 26, 2020, Disability Visibility Project.<\/p>\n<p><a href=\"https:\/\/disabilityvisibilityproject.com\/2019\/04\/07\/ep-48-care-work\/\">Ep 48: Care Work with \u00a0Leah Lakshmi Piepzna-Samarasinha<\/a>, April 7, 2019, Disability Visibility podcast.<\/p>\n<p><a href=\"https:\/\/disabilityvisibilityproject.com\/2019\/08\/25\/ep-58-twitter-chats\/\">Ep 58: Twitter chats with Dawn Gibson and Alex Haagaard<\/a>, August 25, 2019, Disability Visibility podcast.<\/p>\n<p class=\"c-page-title\"><a href=\"https:\/\/www.vox.com\/first-person\/2020\/4\/4\/21204261\/coronavirus-covid-19-disabled-people-disabilities-triage\">I\u2019m disabled and need a ventilator to live. Am I expendable during this pandemic?<\/a> Alice Wong, April 4, 2020, Vox.<\/p>\n<h3><strong>About<\/strong><\/h3>\n<figure id=\"attachment_461405\" aria-describedby=\"caption-attachment-461405\" style=\"width: 500px\" class=\"wp-caption aligncenter\"><img data-recalc-dims=\"1\" loading=\"lazy\" decoding=\"async\" data-attachment-id=\"461405\" data-permalink=\"https:\/\/disabilityvisibilityproject.com\/2019\/08\/25\/ep-58-twitter-chats\/tumblr_inline_p7s7tqxyva1rva8m4_500\/\" data-orig-file=\"https:\/\/i0.wp.com\/disabilityvisibilityproject.com\/wp-content\/uploads\/2019\/08\/tumblr_inline_p7s7tqXYVa1rva8m4_500.jpg?fit=500%2C311&amp;ssl=1\" data-orig-size=\"500,311\" data-comments-opened=\"1\" data-image-meta=\"{&quot;aperture&quot;:&quot;0&quot;,&quot;credit&quot;:&quot;&quot;,&quot;camera&quot;:&quot;&quot;,&quot;caption&quot;:&quot;&quot;,&quot;created_timestamp&quot;:&quot;0&quot;,&quot;copyright&quot;:&quot;&quot;,&quot;focal_length&quot;:&quot;0&quot;,&quot;iso&quot;:&quot;0&quot;,&quot;shutter_speed&quot;:&quot;0&quot;,&quot;title&quot;:&quot;&quot;,&quot;orientation&quot;:&quot;0&quot;}\" data-image-title=\"tumblr_inline_p7s7tqXYVa1rva8m4_500\" data-image-description=\"\" data-image-caption=\"&lt;p&gt; Black woman with curly natural hair wearing a white top with streaks of pink, red, and gray. She is smiling at the camera. &lt;\/p&gt;\n\" data-medium-file=\"https:\/\/i0.wp.com\/disabilityvisibilityproject.com\/wp-content\/uploads\/2019\/08\/tumblr_inline_p7s7tqXYVa1rva8m4_500.jpg?fit=300%2C187&amp;ssl=1\" data-large-file=\"https:\/\/i0.wp.com\/disabilityvisibilityproject.com\/wp-content\/uploads\/2019\/08\/tumblr_inline_p7s7tqXYVa1rva8m4_500.jpg?fit=500%2C311&amp;ssl=1\" class=\"wp-image-461405 size-full\" src=\"https:\/\/i0.wp.com\/disabilityvisibilityproject.com\/wp-content\/uploads\/2019\/08\/tumblr_inline_p7s7tqXYVa1rva8m4_500.jpg?resize=500%2C311&#038;ssl=1\" alt=\"Black woman with curly natural hair wearing a white top with streaks of pink, red, and gray. She is smiling at the camera.\" width=\"500\" height=\"311\" srcset=\"https:\/\/i0.wp.com\/disabilityvisibilityproject.com\/wp-content\/uploads\/2019\/08\/tumblr_inline_p7s7tqXYVa1rva8m4_500.jpg?w=500&amp;ssl=1 500w, https:\/\/i0.wp.com\/disabilityvisibilityproject.com\/wp-content\/uploads\/2019\/08\/tumblr_inline_p7s7tqXYVa1rva8m4_500.jpg?resize=300%2C187&amp;ssl=1 300w\" sizes=\"auto, (max-width: 500px) 100vw, 500px\" \/><figcaption id=\"caption-attachment-461405\" class=\"wp-caption-text\">Black woman with curly natural hair wearing a white top with streaks of pink, red, and gray. She is smiling at the camera.<\/figcaption><\/figure>\n<p><span style=\"font-weight: 400;\"><strong>Dawn Gibson<\/strong>, best known as <a href=\"https:\/\/twitter.com\/DawnMGibson\">@DawnMGibson<\/a> is a well known\u00a0 patient advocate and e-patient, writer, and patient experience consultant working in an advisory capacity with corporations, foundations, researchers, and other thought leaders to form an accurate and helpful understanding of chronic illness and disability.\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400;\">She is the founder and host of the Spoonie Chat Twitter and Facebook communities, regularly fields questions posted to Twitter and the #SpoonieChat tag between events, and works to connect patients with essential self-care concepts, appropriate advocacy organizations, and each other.\u00a0\u00a0\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Tumblr: <\/span><a href=\"https:\/\/webauntie.tumblr.com\"><span style=\"font-weight: 400;\">https:\/\/webauntie.tumblr.com<\/span><\/a><\/p>\n<figure id=\"attachment_467496\" aria-describedby=\"caption-attachment-467496\" style=\"width: 500px\" class=\"wp-caption aligncenter\"><img data-recalc-dims=\"1\" loading=\"lazy\" decoding=\"async\" data-attachment-id=\"467496\" data-permalink=\"https:\/\/disabilityvisibilityproject.com\/2020\/04\/05\/ep-74-coronavirus-and-caregiving\/hwatkins1-1-2\/\" data-orig-file=\"https:\/\/i0.wp.com\/disabilityvisibilityproject.com\/wp-content\/uploads\/2020\/04\/hwatkins1-1.jpg?fit=636%2C556&amp;ssl=1\" data-orig-size=\"636,556\" data-comments-opened=\"1\" data-image-meta=\"{&quot;aperture&quot;:&quot;0&quot;,&quot;credit&quot;:&quot;&quot;,&quot;camera&quot;:&quot;&quot;,&quot;caption&quot;:&quot;&quot;,&quot;created_timestamp&quot;:&quot;0&quot;,&quot;copyright&quot;:&quot;&quot;,&quot;focal_length&quot;:&quot;0&quot;,&quot;iso&quot;:&quot;0&quot;,&quot;shutter_speed&quot;:&quot;0&quot;,&quot;title&quot;:&quot;&quot;,&quot;orientation&quot;:&quot;0&quot;}\" data-image-title=\"hwatkins1 (1)\" data-image-description=\"\" data-image-caption=\"&lt;p&gt;Light-complected Black woman shown shoulders up wearing hair in bun atop her head, blue button earrings, makeup with red lipstick and smiling. She is wearing olive-colored blazer and blue and white patterned blouse with long necklace of various blue-colored pendants&lt;\/p&gt;\n\" data-medium-file=\"https:\/\/i0.wp.com\/disabilityvisibilityproject.com\/wp-content\/uploads\/2020\/04\/hwatkins1-1.jpg?fit=300%2C262&amp;ssl=1\" data-large-file=\"https:\/\/i0.wp.com\/disabilityvisibilityproject.com\/wp-content\/uploads\/2020\/04\/hwatkins1-1.jpg?fit=636%2C556&amp;ssl=1\" class=\"wp-image-467496\" src=\"https:\/\/i0.wp.com\/disabilityvisibilityproject.com\/wp-content\/uploads\/2020\/04\/hwatkins1-1.jpg?resize=500%2C437&#038;ssl=1\" alt=\"Light-complected Black woman shown shoulders up wearing hair in bun atop her head, blue button earrings, makeup with red lipstick and smiling. She is wearing olive-colored blazer and blue and white patterned blouse with long necklace of various blue-colored pendants\" width=\"500\" height=\"437\" srcset=\"https:\/\/i0.wp.com\/disabilityvisibilityproject.com\/wp-content\/uploads\/2020\/04\/hwatkins1-1.jpg?resize=300%2C262&amp;ssl=1 300w, https:\/\/i0.wp.com\/disabilityvisibilityproject.com\/wp-content\/uploads\/2020\/04\/hwatkins1-1.jpg?w=636&amp;ssl=1 636w\" sizes=\"auto, (max-width: 500px) 100vw, 500px\" \/><figcaption id=\"caption-attachment-467496\" class=\"wp-caption-text\">Light-complected Black woman shown shoulders up wearing hair in bun atop her head, blue button earrings, makeup with red lipstick and smiling. She is wearing olive-colored blazer and blue and white patterned blouse with long necklace of various blue-colored pendants<\/figcaption><\/figure>\n<p><b>Heather Watkins<\/b><span style=\"font-weight: 400;\"> is a Boston-based disability rights activist, author, mother, speaker, graduate of Emerson College with a B.S. in Mass Communications. Born with Muscular Dystrophy, loves reading, daydreaming, chocolate, and serves on a handful of disability-related boards. Her blog <\/span><a href=\"https:\/\/slowwalkersseemore.wordpress.com\/\"><span style=\"font-weight: 400;\">Slow Walkers See More<\/span><\/a><span style=\"font-weight: 400;\"> includes reflections and insight from her life with disability.<\/span><\/p>\n<p>Twitter: <a href=\"https:\/\/twitter.com\/hwatkins927\">@hwatkins927<\/a><\/p>\n<p>&nbsp;<\/p>\n<p style=\"text-align: center;\"><b>Support Disability Media and Culture<\/b><\/p>\n<p style=\"text-align: center;\"><a href=\"https:\/\/disabilityvisibilityproject.com\/donate\/\"><b>DONATE<\/b><\/a><b>\u00a0to the Disability Visibility Project\u00ae<\/b><\/p>\n<p>&nbsp;<\/p>\n<h3><strong>Credits<\/strong><\/h3>\n<p><a href=\"https:\/\/twitter.com\/SFdirewolf\">Alice Wong<\/a>, Writer, Audio Producer, Host<\/p>\n<p><a href=\"https:\/\/twitter.com\/WhoAmIToStopIt\">Cheryl Green<\/a>, Text Transcript<\/p>\n<p><a href=\"https:\/\/twitter.com\/kut2smooth\">Lateef McLeod<\/a>, Introduction<\/p>\n<p><a href=\"https:\/\/twitter.com\/MikeeMort\">Mike Mort<\/a>, Artwork<\/p>\n<h4><strong>Theme Music (used with permission of artist)<\/strong><\/h4>\n<p>Song:\u00a0<a href=\"https:\/\/www.youtube.com\/watch?v=N02wZiX7jso\">\u201cDance Off\u201d<\/a><\/p>\n<p>Artist:\u00a0<a href=\"https:\/\/wheelchairsportscamp.bandcamp.com\/\">Wheelchair Sports Camp<\/a><\/p>\n<h4><strong>Music<\/strong><\/h4>\n<p><span style=\"font-weight: 400;\">Music <\/span><a href=\"https:\/\/freesound.org\/people\/TheAudioWay\/sounds\/494066\/\"><span style=\"font-weight: 400;\">\u201cBroken,\u201d<\/span><\/a><span style=\"font-weight: 400;\"> by Kevin Brown, November 16, 2019<\/span><\/p>\n<p><a href=\"http:\/\/creativecommons.org\/publicdomain\/zero\/1.0\/\"><span style=\"font-weight: 400;\">This work is licensed under the Creative Commons 0 License.<\/span><\/a><\/p>\n<h4><b>Sounds<\/b><\/h4>\n<p><a href=\"http:\/\/freesound.org\/people\/Jack_Master\/sounds\/248096\/\">\u201cVOCODER countdown\u201d<\/a>\u00a0by Jack_Master.\u00a0<a href=\"http:\/\/creativecommons.org\/publicdomain\/zero\/1.0\/\">This work is licensed under the Creative Commons 0 License.<\/a><\/p>\n<p>\u201c<a href=\"http:\/\/freesound.org\/people\/sheepfilms\/sounds\/153583\/#\">8 Bit Beeping Computer Sounds<\/a>\u201d by sheepfilms.\u00a0<a href=\"http:\/\/creativecommons.org\/publicdomain\/zero\/1.0\/\">This work is licensed under the Creative Commons 0 License.<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p><a href=\"https:\/\/media.blubrry.com\/disability_visibility\/content.blubrry.com\/disability_visibility\/Final_Ep_74.mp3Podcast\" rel=\"nofollow\">https:\/\/media.blubrry.com\/disability_visibility\/content.blubrry.com\/disability_visibility\/Final_Ep_74.mp3Podcast<\/a>: Play in new window | Download | EmbedSubscribe: Apple Podcasts | Email | RSS&nbsp; What a time to be alive right now, huh? How are you all holding up? &hellip; <a href=\"https:\/\/disabilityvisibilityproject.com\/2020\/04\/05\/ep-74-coronavirus-and-caregiving\/\" class=\"read-more\">Continue Reading <span class=\"screen-reader-text\">Ep 74: Coronavirus and Caregiving<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":467509,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"advanced_seo_description":"","jetpack_seo_html_title":"","jetpack_seo_noindex":false,"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2},"_wpas_customize_per_network":false},"categories":[587152318],"tags":[587152346,426878,187060,69753,587152846,587152862,587152539,587152538],"class_list":["post-467497","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-podcast","tag-care-work","tag-caregiver","tag-caregivers","tag-caregiving","tag-coronavirus","tag-disabled-caregivers","tag-family-caregivers","tag-family-caregiving","post-has-thumbnail"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"https:\/\/i0.wp.com\/disabilityvisibilityproject.com\/wp-content\/uploads\/2020\/04\/Heather-and-Dawn-Twitter.png?fit=1024%2C512&ssl=1","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/p4H7t1-1XCh","jetpack_likes_enabled":true,"amp_enabled":true,"_links":{"self":[{"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/posts\/467497","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/comments?post=467497"}],"version-history":[{"count":0,"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/posts\/467497\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/media\/467509"}],"wp:attachment":[{"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/media?parent=467497"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/categories?post=467497"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/tags?post=467497"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}